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Brighton & Sussex Medical School

Sussex MND care and research Network

BSMS > Research > Clinical Neuroscience > Sussex MND care and research

Sussex MND Care and Research

The Sussex Motor Neurone Disease Care and Research Network commenced on 1 December 2016 with funding from the Motor Neurone Disease Association. The primary goal of the network is to improve support and care for people with Motor Neurone Disease (MND) living in Sussex.

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Care services

East Sussex, West Sussex, Brighton and Hove.

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Research

The latest project summaries for Sussex MND Care and Research.

SussEX MND Network Research projects >

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BACKGROUND IMAGE FA photo of a person looking up at pieces of artwork at an exhibitionOR PANEL

What does living with motor neurone disease look like? Art therapy in practice

The video below was created as part of an exhibition, organised by the Sussex MND Care and Research Network and BSMS, which showcased the work produced by people affected by MND that they created during art therapy. The participants discuss the impact that art therapy has had on them and their families and carers.

How the MND art therapy project came about 

The art therapy project was initiated by Debbie South, MND Specialist Practitioner, in 2020 with funding from the West Sussex South Branch of the MND Association. Since 2024, the East Sussex branch also funds sessions for people affected by MND.

The project's mission statement

To enable those with MND and their wider circle of people, to creatively express the experience of their every day lives. The project aims to:

  • Engage people with MND in a personal creative experience
  • Allow those involved with the people with MND to add to this experience
  • Develop expression through the collection of drawings, art, words and artefacts in whatever form they may take
  • Exhibit some of this work on the MND website
  • Exhibit some of this work as an exhibition in a local venue

View the exhibition artwork here >

Watch the video stories of the participants and their families here >