myTUBE
A great resource for patient and professionals about Gastrostomy tubes.
mytube.mymnd.org.uk
myNIV
The complimentary site for NIV, also developed by the Sheffield SiTRAN team.
niv.mymnd.org.uk
Patients Like Me
A forum for people with MND (or other health conditions) where they can sign up and share their experiences, treatments and symptoms with other people like them around the world.
www.patientslikeme.com
ALS Untangled
Helps people with MND to review alternative and unlicensed treatments.
www.alsuntangled.com
Rare Dementia Support
Offers support for people and their families living with rare dementias, including Frontotemporal Dementia.
www.raredementiasupport.org
National Institute for Health and Care Excellence (NICE)
A guideline on MND, published 2016.
www.nice.org.uk/guidance/ng42
Alternative & Augmentative Communication (AAC)
Chailey AAC Hub: Specialist AAC assessment and provision for Sussex & Surrey
www.sussexcommunity.nhs.uk/services/chailey-communication-aidservice
Environmental Controls
West Sussex
www.stgeorges.nhs.uk
East Sussex
www.kmpt.nhs.uk