Produce a Guidance Toolkit for health and care researchers, to facilitate the inclusion of people with language needs in Sussex in their research projects
Amount rewarded: £6,950.00
The NHS Health Research Authority is clear that including diversity in health and care research is a key driver for ensuring people get the best healthcare for them and so reduce health inequalities. Evidence shows that people with language needs suffer significant health inequalities; report greater barriers to accessing health and care, have a poorer patient experience, and are more likely to be in poor health. Exclusion from health and care research exacerbates and amplifies health inequalities because the specific experience and needs of people with language needs aren’t considered when developing ways of preventing, diagnosing, and treating health conditions.
2021 Census data from Brighton and Hove shows that, for 9% of residents English is not their first language, of which 13% cannot speak English well. There is a similar picture in other parts of Sussex particularly Crawley, Hastings and coastal West Sussex. In 2023-24, SIS delivered 19502 interpreting sessions to 5633 people in 47 languages (across Sussex) demonstrating the depth of need and numbers of people requiring language support.
Objectives of the Study
This aim of this project is to break down health inclusion barriers, promote diversity and participation in health and social care research, improve health equity and outcomes and reduce discrimination and stigma.
The project will take a collaborative, co-design approach by involving a wide variety of interested stakeholders, including academics, clinicians, community researchers, local authorities and industry networks. This will ensure cultural competence, wide applicability, shared ownership and comprehensive distribution.
There will be initial consultation in workshops to gain full understanding of the needs of different stakeholders. This will be followed by co-design and production of the guidance toolkit, and then distribution and dissemination of the toolkit.
The study will increase the understanding of the experience of people with language needs for health and care researchers. It will also provide more opportunities for people with language needs to engage in health and care research. This will in turn increase the diversity of people involved in health and care research, and increase the confidence of people with language needs to engage in research.