Skip to main contentSkip to footer
A illustrations of a group of people sat around a table
Brighton & Sussex Medical School

HRP PCIE

HRP PCIE

Welcome

Welcome to the Public and Community, Involvement and Engagement Team (PCIE) page. We are a small team of volunteers who have been providing public advice and input to the Brighton and Sussex Health Research Partnership through its formation and development.

We all have lived experience of using the NHS as do our friends and families and we bring this into the various research meetings that we attend. It's been exciting to be involved to provide a public voice into such an important development which is intended to deliver improved health and care for the people of Sussex and beyond.

A illustrations of a group of people sat around a table

BACKGROUND IMAGE FOR PANEL

What is PCIE and why is it important?

It is important that the people who are the focus of research in health and social care have a say in how that research is identified, designed and carried out. Research should be relevant and meet the needs that the public have helped identify, in partnership with those who deliver the health and social services in our region. 

Public and Community perspectives and opinions are important. They offer a point of view that academics or service providers may not have. When everyone’s ideas and views are brought together they can result in high quality, relevant and practicable research evidence, which can improve the health, care and wellbeing of others across Sussex and beyond.

BACKGROUND IMAGE FOR PANEL

What is Public and Community Involvement in research?

Public and Community involvement in research is referred to as research being carried out 'with' or 'by' members of the public and community rather than 'to', 'about' or 'for' them. It involves collaborative working with our public partners, working together to ensure that the voices of local people are at the heart of Health and Care research. It is different to research participation i.e. taking part in a study.

What is Engagement?

An illustration of two people talking and working on laptops

By this, we mean reaching out to individuals or communities to provide the opportunity for a two-way process of sharing information, discussing and listening to ideas to help shape research. Engagement is about building working relationships.

Who are we?

At the moment, there are five Public Advisors, who have been appointed initially for a three year period. We are:

Simon Porges (Chair)

Simon has been involved in Research as a Research Champion for around three years, during this time he has also been a public representative on a large scale end of life study and participated in a COVID-19  vaccine clinical trial. Having been both a cancer patient and carer he is very excited about the prospect of the HRP delivering better outcomes for the people of Sussex through better, outcome driven, health and care research. He lives in Hove with his family and you’ll often find him at parkrun, running on the Downs or at other local running events!

“This has been a fantastic opportunity to contribute to and help shape something that has the potential to be of massive benefit to most importantly the health of people but also the economy of Sussex.”

Palo Almond (Deputy Chair)

Dr Palo Almond is a retired health professional and public health academic and now spends her time painting and exhibiting her art at exhibitions. When she’s not doing this she is supporting and advising on research policy, proposals, and education, either as a research champion with Sussex Community Foundation Trust (SCFT) or as an advisor with the HRP. She has a special interest in promoting health, reducing health inequalities and championing Engagement, Diversity and Inclusion (EDI).

“It’s been great being involved in an evolving group and realising early on that our input was valued.”

Amy Broadbent

Amy Broadbent is an Expert by Experience, using her experience of children and young people's services to support best practice. Amy also works as a youth consultant for NHS Sussex and lectures at the University of Brighton.

“This opportunity has provided me the platform to get a series of stakeholders together to talk about children and young people research and its implementation in services. We have already started to think about how research can be included on the NHS Sussex Children and Young People online panel”.

Sarah Markham

Sarah is a long-term patient and mathematician with a deep interest in patient safety and addressing health inequalities. She is engaged in Public Participation and Involvement (PPI) and academic work in modelling population health and understanding underlying mechanisms. Like Simon, she is a regular runner.

“I am currently super excited to be a co-Investigator on a funded study of procedural justice in secure hospitals.”

Alan Sutton

Alan holds a number of volunteer roles, including being an Elected & Lead Governor for the Sussex Community NHS Foundation Trust and a long standing National Institute for Health Research (NIHR) Public Research Champion for his trust, the University Hospitals Sussex NHS Foundation Trust and the wider Kent Sussex and Surrey region.

“I particularly enjoyed the Academic Conference where our group were fully engaged and contributed some great questions and lived experiences.”

Jane Woodhull

Jane is a retired nurse who spent 40 years in clinical, research and leadership roles within cancer services. In many of her roles she worked with national charities and academics working in partnership with patients and their families to improve services.

More recently she was Inclusion and Engagement Manager for Brighton and Hove LGBT Switchboard, a by and for charity, where she worked in partnership with communities, NHS Sussex, universities and the voluntary and community sector to address the inequalities LGBTQ+ people face. She has also been part of the Research Engagement Network Leadership Team which has developed a network of diverse community researchers to support Sussex-based health and care research.

“This role is a brilliant opportunity to ensure that people from multiply marginalised communities are able to influence future health and social care research.”

 

As our role and remit becomes clearer, we hope to expand the team ensuring it is as representative of the diversity of the Sussex population as possible.

BACKGROUND IMAGE FOR PANEL

What have we been doing?

Our journey so far mirrors the evolution of the Health Research Partnership itself. We have reviewed and had input to the HRP’s Strategy as it it has evolved. Our voice is definitely heard, and many of our suggestions have helped shape the strategy’s content, format and language.We have then been very active in sharing information, consulting and gaining input in the wider community. All of us are members of various public and patient representative groups and it has been invaluable to get views from a broad spectrum of people.
Some of the activities we have taken part in:

  • Members of the Sussex HRP Board and Executive Committee
  • Attended the Sussex Clinical Academic Conference
  • Attended Research Engagement Network Leadership Team meetings
  • Had input to the Health & Care Research Training Hub
  • Met with several Youth Groups to discuss how we work best together
  • Involved in discussions on SCFT’s research strategy 
  • Engaging and spreading the word with other public and patient representative groups for example at:
    • Chailey Heritage Foundation
    • Chichester Nursing School
    • Sussex Community Foundation Trust Embrace Network Meeting
    • University Hospitals Sussex Research Champion meetings
    • NHS Sussex Youth Consultation events
    • Patient participation groups at local GP surgery
    • Sussex Community NHS Foundation Trust - at AGM workshop with the Trust's research team
BACKGROUND IMAGE FOR PANEL

The future?

It is true to say our future role is not fully defined yet - and part of the excitement is helping to design our role to be as effective as possible in shaping the HRP so that it delivers for the people of Sussex. The HRP seeks to reduce health inequalities in the county and appointing a PCIE group will assist them in this as we can hold them accountable and can challenge their decisions, actions and intentions. An important part of this will be understanding how we best interact with the many existing Public, Patient and Community groups in Sussex so that through collaboration we provide input to the HRP to make it successful.

Contact us

If you wish to contact us, please email healthresearchpartnership@bsms.ac.uk.

Please see the links below for updates and news from the Health Research Partnership

VIEW THE HEALTH RESEARCH PARTNERSHIP WEBPAGE >

VIEW THE HEALTH RESEARCH PARTNERSHIP X PAGE >

To sign up for the Health Research Partnership Newsletter, please complete the form below.

  • Name
  • Please tick this box if you'd like to hear from us. By ticking this, you understand and consent to how we will use your data.
BACKGROUND IMAGE FOR PANEL

Research Engagement Network

The national Research Engagement Network (REN) Development Programme was launched in 2022 and jointly funded by NHS England and the Department of Health and Social Care. It has funded Integrated Care Systems (ICS) to grow their local research engagement networks by working with local voluntary, community and social enterprise (VCSE) sector organisations to engage these “underserved” communities. 

Find out more here >