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A women with dementia wearing headphone and sitting next to her carer both clapping their hands
Brighton & Sussex Medical School

East Meets West

East Meets West

East Meets West

Many people living with dementia (PLWD) and other neurological conditions, such as severe depression or epilepsy, wish to maintain their independence and continue living at home, benefitting from more freedom, flexibility, and social connectedness. However, the quality of home care directly influences their quality of life and ability to stay at home for longer. The current evidence suggests that residents in care homes who are living with dementia are particularly vulnerable to infections in outbreaks, possibly due to behavioural factors and aspects of their care needs. Immense changes have been made in infection control, including COVID-19 outbreaks, with profound impacts on daily life in care homes. Less is known about this in domiciliary (home) care, where changes in infection prevention protocols have also led to far-reaching changes such as universal masking and the use of personal protective equipment. Furthermore, governmental policies differ across countries, with significant differences between the Eastern and Western parts of the world.

A woman with dementia sat smiling sitting next to her carer

About

This project aims to explore the impact of COVID-19 outbreaks on older participants with neurological conditions, such as cognitive impairment, dementia, severe depression, or epilepsy, in residential care in England and Japan. It will also collect detailed information about the impacts of COVID-19 outbreaks on older participants with neurological conditions in England and Japan via online surveys and qualitative interviews.

What we do know

  • Infection Vulnerability: People living with dementia in care homes are particularly susceptible to infections during outbreaks, possibly due to behavioural factors and specific care needs.
  • Impact of Infection Control Changes: Infection prevention measures, such as universal masking and the use of personal protective equipment (PPE), have significantly changed the landscape of care, especially in residential settings.
  • Differences Across Care Settings: Changes in infection control are well-documented for residential care homes but less so for domiciliary (home) care.
  • Global Policy Variation: There are notable differences in infection control and care policies across countries, particularly between Eastern and Western countries, such as England and Japan.

What we don’t know

  • Impact on Domiciliary Care: There is limited understanding of how infection prevention protocols, such as PPE and masking, have affected care and quality of life for older adults with neurological conditions receiving home care.
  • Comparative Data Between Countries: Little comparative information exists on how these changes have affected individuals with neurological conditions in different countries, particularly England and Japan.
  • Long-Term Effects of COVID-19 Protocols: The long-term impact of infection prevention measures on the physical and mental health of people living with dementia and other neurological conditions is still unclear.. 

What we will do in this study

To investigate the above questions, in this study, we will explore the impact of COVID-19 outbreaks on older adults with neurological conditions, such as dementia, cognitive impairment, severe depression, and epilepsy, in residential care settings in England and Japan. Using online surveys and qualitative interviews, we will gather detailed information on the experiences of participants and their caregivers to understand how infection control measures, including the use of personal protective equipment and masking, have affected their quality of life. We will also compare the impact of differing governmental policies and infection prevention protocols in England and Japan while addressing the less-explored effects on domiciliary care settings.


Meet the team

We are a team of researchers with multidisciplinary backgrounds with a shared interest in public health, epidemiology, social care, and dementia.

BACKGROUND IMAGE FOR PANEL

Contact us

If you need any further information about the East Meets West Study, please email Dr Dorina Cadar at d.cadar@bsms.ac.uk.