Selected publications
Ferretti, A., Ienca, M., Sheehan, M. et al. Ethics review of big data research: What should stay and what should be reformed?. BMC Med Ethics 22, 51 (2021). https://doi.org/10.1186/s12910-021-00616-4
Cottrell L, Economos G, Evans C, Silber E, Burman R, Nicholas R, et al. (2020) A realist review of advance care planning for people with multiple sclerosis and their families. PLoS ONE 15(10): e0240815. https://doi.org/10.1371/journal.pone.0240815
Farsides B. Commentary 2: Always be Prepared: Anticipating and Confronting Ethical Challenges in the Research Setting. Journal of Empirical Research on Human Research Ethics. 2019;14(5):516-518. doi:10.1177/1556264619835709b
Jepkosgei J, Nzinga J, McKnight J. Maintaining Distance and Staying Immersed: Practical Ethics in an Underresourced New Born Unit. Journal of Empirical Research on Human Research Ethics. 2019;14(5):509-512. doi:10.1177/1556264619835709
Samuel, G.N., Farsides, B. Public trust and ‘ethics review’ as a commodity: the case of Genomics England Limited and the UK’s 100,000 genomes project. Med Health Care and Philos 21, 159–168 (2018). https://doi.org/10.1007/s11019-017-9810-1
Samuel GN, Farsides B. Genomics England’s implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom’s 100,000 Genomes project and the need for public support. Public Understanding of Science. 2018;27(3):352-364. doi:10.1177/0963662517747200
Dheensa S, Samuel G, Lucassen AM, et al. Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the 100 000 genomes project. Journal of Medical Ethics 2018; 44:397-403.
Ine Van Hoyweghen, Erik Aarden. (2021) One for All, All for One? Containing the Promise of Solidarity in Precision Medicine. Critical Public Health 0:0, pages 1-12.
Samuel, G.N., Dheensa, S., Farsides, B. et al. Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: moving towards a more relational approach. BMC Med Ethics 18, 47 (2017). https://doi.org/10.1186/s12910-017-0207-8
Jarrett, L. (Ed.). (2007). Creative Engagement in Palliative Care: New perspectives on user involvement (1st ed.). CRC Press. https://doi.org/10.1201/9781315380049
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